I wanted to give you a little update on Noah. The outpouring of notes, texts, little gifts and all around love and support for our family during this time has been beyond.
We got the results of the EEG and MRI he had a few weeks ago – you know, before he broke his arm. And the great news is that the MRI was completely normal. The not-so-great news was that the EEG showed “elevated brain activity”. The neurologist (who we now officially adore) recommended that we start Noah on medication, but after some more conversation thought it would be even better if we would agree to do an at-home, 48-hour EEG. This would give him a longer and more detailed picture of Noah’s brain activity, and maybe even pinpoint those times of “elevated” activity too.
Of course we agreed and spent an “interesting” weekend with our wired-up boy (and yet more “Madagascar”….).
We were told that it would take a week or so to get the test results back and so we put it toward the backs of our minds for the time being.
And then two days later the doc called, asking me to come in right away. Apparently that elevated brain activity that he observed during the first EEG was present for pretty much the entire 48 hours.
I called Mike (who was away on business) and we both had the same exact reaction:
See – we’ve been having issues with Noah of late – issues that are erratic, inconsistent and unpredictable. He is, for the most part, this amazing, funny, congenial little boy. He loves school and brings nothing but joy to our lives. But then there are moments – mostly at school, mostly with peers – that reveal a Noah that struggles inexplicably. And no one – not us, not his teachers, not his doctors – has been able to to identify what it is or why it happens.
This test result – as alarming as it sounded – was the first piece of news that finally connected some of the dots that we’ve heretofore been unable to do. And it was also a relief. Because now we could finally – finally – put our little guy on a path to solving some of these issues.
The doctor was amazing – so comforting and so optimistic. He described the EEG as an “electrical storm” in Noah’s brain, which would explain why he – as bright and capable as we know he is – has not made progress in certain areas that we’ve felt certain he should.
We are starting him on medication and are so hopeful that this will be the answer we’ve been looking for.
Of course, Noah has no idea that he’s been experiencing this, and through it all – the broken arm, X-rays, IV’s and many hours in waiting rooms – has been the sweet, delightful boy we love so much.
Though by no means a perfect parent, the one thing I’ve always prided myself on was “knowing” my kids – really knowing them. And this has been such a stressful situation mainly due to the “not knowing”. Why couldn’t I crack this code? And so – ironically – the seizure that set this all in motion was truly a blessing.
Over the moon for this little guy.
Have a wonderful Valentine’s Day!
(Almost forgot this week’s Babble links!)